Dear Friend of the NJ Metro Chapter,
Please read this message to learn about Relationship Matters and wellness
classes, telephone and web learning dates (employment, research, intimacy, etc), research opportunities, climbing, cycling,
Walk MS weekend and much more!
MS Awareness Week!
To
learn about all the activities taking place during MS Awareness week and
throughout the month of March, click on this link: http://www.nationalmssociety.org/Chapters/NJM/Raise-Awareness/MS-Awareness-Week-2015. In honor of
MS Awareness in March, please know that several additional email messages will
be sent in the coming weeks!
Live Webcast On
Progressive MS March 4
A panel of researchers and
scientists will gather to discuss recent advancements and updates in
Progressive MS research and treatment on Wednesday, March 4, 2-3pm. To register for the
webcast visit: www.nationalmssociety.org/webcasts
Topics include:
- Updates on Progressive MS research
- Advancements in Progressive MS treatment, symptom management and
rehabilitation
- Progress made by the Progressive MS Alliance
Spring Wellness
Classes kick off the week of March 16th
Yoga, tai chi, aquatics!
You must register through the Chapter in order to participate in
these wellness classes. To register contact Aubrey at aubrey.donovan@nmss.org and include your name, email / mailing
address, daytime phone number, and the name & location of the program(s)
you are interested in.
OR you can
call the Society and ask for a listing of classes in your area
1-800-344-4867.
There is a voluntary $30 suggested donation (not mandatory) for
participation in a program.
Please visit the chapter Wellness Page for more information on wellness classes in your area!
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Hamilton YMCA – One Step Program
The New Jersey Metro Chapter of the National Multiple
Sclerosis Society and the Hamilton YMCA are proud to announce a collaborative
effort in developing a customized wellness program for individuals with
multiple sclerosis. The One Step program is a 12-week, 24-session course
designed for medically diagnosed adults with MS. One Step aims to provide
attendees with a comfortable and accessible environment to encourage
empowerment via facilitated conversations, and, through therapeutic exercises,
address the issues of fatigue, mobility, weakness and depression. Registration for One Step begins
on March 2nd, and the program starts on March 16th.
Classes will meet Monday and Wednesday morning at 10am, or Tuesday and Thursday
evening at 6:30pm. For more details or to register for this program, please
contact: Joe Fuhrman, Hamilton YMCA’s Director of Member Initiative &
Healthy Living 609-581-9622 x132 or prevention@hamiltonymca.org.
You can also view the Hamilton YMCA’s website at www.hamiltonymca.org
Register for this FREE
unique program that focuses on communication in relationships - Relationship Matters at
Holy Name Hospital in Teaneck!
Building a healthier relationship usually
involves making changes — changes in how you listen and talk to your partner
and changes in the way you solve problems. The information provided in this
workshop will enhance your understanding of effective communication, as well as
ways to resolve conflicts and strengthen your commitment to your partner and
relationship
What: A Relationship
Enrichment Course for Couples Living With MS
When: Sunday, March 22, 2015;
Check-in and coffee at 9:15am; program from10am-2pm; Lunch
will be served.
Where: Holy Name Medical Center –
conference room #4;
718
Teaneck Road, Teaneck, NJ
Facilitated
by: Deb Mandelbaum,
LCSW
Registration Required/More Information: contact Lisa at lisa.torre-janssen@nmss.org or 732-508-4431
Can Do Multiple
Sclerosis Upcoming Webinars – FREE!
2nd Tuesday of each month 8:00p.m. –
9:15p.m. EST. Reserve your spot now!
Can Do MS’s monthly webinar
series offers insight from MS experts representing different medical
disciplines so that participants can gain additional knowledge relating to
MS. Participants interact with a team of Can Do MS Programs Consultants,
by asking questions to learn how to actively co-manage their MS from the
comfort of their home. The next webinar is listed below:
Tuesday,
March 10, 8-9:15pm
Staying
Vertical: Reduce Risks for Falls
Living
with MS can increase your chances of falling and becoming injured. This webinar
will help you eliminated fall hazards in your home and make it easier to get
around safely. Join Physical Therapist Kathy SanMartino and Occupational
Therapist Ann Mullinix as they discuss risk factors that can contribute to
falling and provide ways to improve your safety at home and in the community.
This program will assist you in making good judgment calls to prevent you
from falling and help you stay vertical.
Register
from this link: https://cc.readytalk.com/cc/s/registrations/new?cid=f19kr6dgeoqs.
Webinar Series Archive
If you are not able to view Can Do MS webinars live, then please
Can Do MS’s webinar archives. Watch them on your own time. Visit http://www.mscando.org/webinararchive
Tele-learning Series
What: A series of teleconferences aimed
at providing information and guidance on current matters essential to living
one’s best life with MS featuring experts by phone with an online presentation
and Q&A. The remainder of the series is listed below:
MS Employment: 4 Part Series – here are 2 remaining
calls in this series:
March 12, 26; 8pm
Managing MS Bowel and Bladder
Symptoms
Tuesday, March 17- 7 pm or
Thursday, March 19– 10pm
Sex ED for Grownups-Intimacy in MS
Tuesday, May 19- 7 pm or
Thursday, May 21- 10pm
Gender Differences in MS
Tuesday, July 21- 7 pm or
Thursday, July 23- 10pm
Preparing for MS Doctor Visits
Tuesday, Sept. 15- 7 pm or
Thursday, Sept. 17- 10pm
Where: from the comfort of your own home
Registration
is required: call -1-800-344-4867 or email generalmailbox@nmss.org or register online from this link: http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Services/Telelearning-Series-2014-2015
You will get a call in number or web link upon registration. Register for all of them today – you
will receive a reminder for each call.
Please note: all tele-learning calls are recorded and can be
found on the same webpage indicated above.
Holy Name Orthotic
Clinic
The physical therapy department of Holy Name Medical Center offers
an orthotic clinic for anyone needing to get an ankle foot orthotic or other
prescribed brace; patients will be evaluated by physical and occupational
therapists; orthotic vendors will be present. The clinic is held on the
second Wednesday of each month. To make an appointment or to get more
information, please call the physical therapy department at 201-833-3085.
Programs at the Barnabas MS Center 200 South Orange Ave, Livingston
- Craft Fair – looking for people
who want to show/sell their items! Are you a person living with MS? Do you create or design special items (ex – soaps, jewelry,
paintings) to show and sell at a fair within Barnabas Health? For more
information, contact Lauryn Weinshank, LSW by March 15 at 973-322-7935 or lweinshank@barnabashealth.org
- March
12, 2015, 9am – Breakfast, Bagels, and MS Buzz. Speaker: Krupa Pandey, MD,
Conference Room B
- March
30, 2015, 11am – MS Month Chit Chat – Social Work Support Group, Conference
Room A
- Date
to be announced - Exercise and Healthy Eating – Stacy Pinke, RD (late
March) (Please call Lauryn Weinshank, LSW 973-322-7935 if interested; you will
be notified of its schedule)
Please
call Infolink 888-724-7123 to register
Questions?
Call Lauryn Weinshank, LSW 973-322-7935
Program in Spanish -
Please share this with anyone you know who is affected by MS and also speaks
Spanish!
Café con Leche
Café con Leche
es un programa gratuito de la Sociedad ofreciendo un grupo de
apoyo que se reúne mensualmente por teléfono bajo la dirección de un
profesional para todos los hispanohablantes afectados por la esclerosis
múltiple y que quieren comunicarse con otros. Para averiguar más o inscribirse,
llame al 1-800-344-4867, opción 3.
Café con Leche
is a Society program offering a free monthly professionally led
telephone support group for anyone affected by MS who speaks Spanish and wants
to connect with others. To learn more or to register, call 1-800-344-4867.
FRIENDS – that is what
you get when you join a self-help group (SHG)!
F = Fun to be had when you join the
group.
R = Research updates and study participation
experiences to be shared among group members.
I = Information to be discussed about a
variety of topics.
E = Education is important.
N = Network to live your best life with MS.
D = Dedicate your time to help people
with MS.
S = Socialize, meet new people.
There are more than 30 SHGs in the 14 counties of the NJ Metro
service area. There may be one that is just right for you! Learn
about the different groups and see how you can contribute to the excitement of
their meetings. Your participation and voice is always welcome!
NEW groups are now forming at Overlook Hospital in Summit, at the
library in Middletown and at the Holy Name Fitness Center in Oradell.
A group for veterans with MS meets at the VA in East Orange on the
4th Tuesday of every month.
For more information contact Joyce Williams at 973--676-1000
x1729.
For more information about SHGs, contact Lisa at that Chapter at lisa.torre-janssesn@nmss.org or at 732-508-4431.
You can also view the Chapter website page at: http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Programs/Self-Help-Group
People who served in the armed forces may have special benefits
that address their MS related needs. For more information to see if you are
eligible for specific veteran programs, contact Joyce Williams at 973-676-1000,
ext. 1729
Care Partner Support
Group
Connect with other care partners, find support and share your
experiences. This National MS Society support group is led by experienced
volunteers who are here to help you navigate life as a care partner of a person
with MS. To learn more, click on this link: Carepartner Support Group
Coaching for Emerging Artists
Arts Unbound is excited to announce it has received a grant from
the Kessler Foundation to provide professional development support to fifteen to
twenty artists with disabilities over the next year (October 2014-September
2015).
Arts Unbound is actively recruiting new emerging artists with
disabilities for the program. All the participants will be expected to commit
to developing a career plan, participate in workshops and master classes, and
learn how to approach galleries and retailers. Staff will conduct portfolio
reviews, promote the participants’ work to galleries, boutiques, and other
retailers, license works for reproduction, help artists build online
portfolios, and host group art exhibits.
Artists interested in participating should contact Celene Ryan,
Director of Artist Development at Arts Unbound at 973-675-2787 or cryan@artsunbound.org. You may send up to three images of work
you think represents your strongest efforts. Please also share a little about
yourself and your artistic goals for the next year.
Research Participation
Opportunities – you may even get a stipend!
There are several opportunities for people with MS to participate
in research studies, either on site, at home or online. Currently our
website describes specific research opportunities with Columbia University,
Kessler Foundation Research Center, Rutgers, The State University of NY at
Buffalo and University at Albany. Click on this link to learn about these
studies:
http://www.nationalmssociety.org/Chapters/NJM/Services-and-Support/Resources/Local-Research-Studies
For more information about
additional nationwide opportunities, click on this link:
http://www.nationalmssociety.org/Research/Participate-in-Research-Studies/Surveys#section
Do you have an
employment question you would like answered? Are you curious about workplace
disclosure, social security benefits, need a reasonable accommodation or are
you thinking about returning to work?
If so, the National MS Society has a dedicated employment
specialist to answer your questions. Feel free to pose your questions
directly to this email address: EmploymentQuestions@nmss.org. You can expect to receive a
response within 48 hours.
How to Choose the
Wheeled Mobility Device that's Right for You
You can learn about how to choose a
mobility device right from the comfort of your own home! The videos are available
on the National MS Society website (scroll to the bottom and both parts are
there) and on YouTube. They are equipped with closed
captions. To activate the closed captions when playing the videos on YouTube,
click on the CC button on the toolbar that appears below the video, and select
on.
Are you looking for a low cost mobility device? Then read
the next paragraph to learn about the Chapter’s Client-to-Client
Resources webpage.
Client to Client
Resources
View this webpage to learn about specific durable medical
equipment that is available free or low cost:
http://www.nationalmssociety.org/Chapters/NJM/Find-Resources-and-Support/Resources/Client-to-Client-Resources
Free Educational
Programs from Pharmaceutical Companies
The National MS Society, New Jersey Metro Chapter is making this
information available to you about these educational opportunities. The
National MS Society, New Jersey Metro Chapter is not sponsoring these programs.
The Society has had no role in developing the content of these programs:
What:
MS Relapse Symptoms: Understanding your Treatment Choices
When:
Monday, March 9, 6pm; meal will be provided
Where:
Il Giardino Sul Mare,2 Hollywood Boulevard, Forked River
Speaker
: Sumul Raval, MD, Neurologist
RSVP:
Call 1-877-219-0410 or www.msrelapseprogram.com Sponsored by:
Mallinckrodt Pharmaceuticals
-----------------------------------------
What:
Living with MS: An informative event for people living with MS and their
Care Partners
When:
Wednesday, March 11th, 2014 at 6 pm
Where:
The Madison Hotel, 1 Convent Road, Morristown, NJ 07960 (dinner will be served)
Speaker:
Dr. Stuart Fox, The Neuroscience Center of Northern New Jersey, Morristown, NJ
& a MS ambassador
RSVP:
1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com
Sponsored
by: Genzyme
-----------------------------------------
What: The Facts on MRIs & MS
When: Wed, Mar 11, 6:45 pm; complementary dinner served
Where: Maggiano's Little Italy 390 Hackensack
Ave, Hackensack (201-220-2030)
Speaker: Amos Katz, MD
RSVP: 1-877-969-1722 or mslifelines.com/liveevents
Sponsored
by: EMD Serono
(Rebif)
-----------------------------------------
What:
Tysabri Webinar Series- The Importance of Staying on Therapy
When:
Wednesday, March 11, 2015, 8:00 pm ET
Where:
from the comfort of your home; this is a webinar
RSVP:
www.TysabriWebEvents.com or call
1-866-539-8127
-----------------------------------------
What:
MS Relapse Symptoms: Understanding your Treatment Choices
When:
Monday, March 16,2015, 6pm; meal will be provided
Where:
Rooney’s, 100 Ocean Avenue, Long Branch
Speaker:
Sumul Raval ,MD, Neurologist
RSVP:
Call 1-817-219-0410 or www.msrelapseprogram.com
Sponsored
by: Mallinckrodt Pharmaceuticals
-----------------------------------------
What:
Living with MS: An informative event for people living with MS and their
Care Partners
When:
Wednesday, March 19th, 2014 at 6 pm
Where:
Mohawk House, 3 Sparta Avenue, Sparta (dinner will be served)
Speaker:
Yevgeniy Khesin, MD, Neurologic Associated Arts, Newton, NJ & a MS
ambassador
RSVP:
1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com
Sponsored
by: Genzyme
-----------------------------------------
What: Plegridy, Inside Interferons
When: March19th, 6-8pm; registration begins at
5:30pm; complimentary dinner will be served
Where: Morristown Hyatt Hotel, 3 Speedwell Ave, Morristown
Speaker: Dr. Krupa Pandey, MD, The MS Center
at St. Barnabas in Livingston, NJ
RSVP: 1-866-955-9999
Sponsored
by: Biogen
Idec
-----------------------------------------
What:
Living with MS: An informative event for people living with MS and their
Care Partners
When:
Friday, March 20th, 2014 at 12 pm
Where:
Maggiano’s Little Italy, The Shops at Riverside Square, 390 Hackensack Avenue
Hackensack, NJ 07601
Speaker:
Dr. Andrew Woo, Santa Monica Neurology, Santa Monica, CA & a MS ambassador
RSVP:
1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com
Sponsored
by: Genzyme
-----------------------------------------
What: The Facts on MRIs & MS
When: Wed, Mar 25, 6:45 pm; complementary dinner served
Where: Iberia Tavern and Restaurant 80 Ferry St,
Newark
Speaker: Mark Diamond, MD
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored
by: EMD
Serono (Rebif)
-----------------------------------------
What:
MS Relapse: Understanding Your Treatment Options
When:
Tuesday, March 31, 6:00 check in and 6:30 presentation with dinner
Where:
Maggiano's, 70 Riverside Square Mall, Hackensack,
Time:
Speaker: Mary Ann Picone, MD
RSVP:
877-219-0410, program code 2666
Sponsored
by: Mallinckrodt Pharmaceuticals
-----------------------------------------
What:
Living with MS: An informative event for people living with MS and their
Care Partners
When:
Tuesday, April 7th, 2014 at 6 pm
Where:
The Madison Hotel, 1 Convent Road, Morristown, NJ 07960 (dinner will be served)
Speaker:
Dr. Stuart Fox, The Neuroscience Center of Northern New Jersey, Morristown, NJ
& a MS ambassador
RSVP:
1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com
Sponsored
by: Genzyme
-----------------------------------------
What:
Living with MS: An informative event for people living with MS and their
Care Partners
When:
Friday, April 10th, 2014 at 11 am
Where:
High SocieTea House, 2 Old Newark Pompton Turnpike Wayne, NJ 07470
Speaker:
Dr. MaryAnn Picone, Holy Name MS Center, Teaneck, NJ & a MS ambassador
RSVP:
1-866-703-6293 or GenzymePatientRSVP@ahmdirect.com
Sponsored
by: Genzyme
-----------------------------------------
What; Ampyra - I Will Take the Next Step
When: Wednesday April 22,2014, 6:30pm
Where: Maggiano’s Little Italy, 70 Riverside Square Hackensack, NJ
07601
Speaker: Mary Ann Picone, MD Medical Director – MS Comprehensive
Care Center at Holy Name
RSVP: 1-800-397-8082
or visit www.LiveAmpyraEvent.com; space is limited
Sponsored by: Acorda
-----------------------------------------
What: Ampyra- I Will Take the Next Step
When: Tuesday, April 21, 2015 6:30 pm
Where: Calabrias, 588 S. Livingston Ave. Livingston NJ 07039
Speaker: Krupa Pandey, MD - Barnabas MS Comprehensive Care Center
RSVP: 1-800-397-8082
or visit www.LiveAmpyraEvent.com; space is limited
Sponsored by: Acorda
-----------------------------------------
What:
Making sense of MS Today
When: April
22 2015, 6:45 pm (with
complementary dinner included)
Where:
Iberia Tavern and Restaurant 80 Ferry St, Newark
Speaker:
Mark Diamond, MD
RSVP: 1-877-969-1722 mslifelines.com/liveevents
Sponsored
by: EMD Serono (Rebif)
-----------------------------------------
What:
Patient Empowerment Program – “Understanding MS Symptoms” / “Biogen Idec
Treatments for Relapsing MS”
When:
5/7/2015 at 6:00 PM Eastern - Meal will be served.
Where:
Newark Liberty International Airport Marriott, 1 Hotel Road, Newark, NJ 07114
Speaker: Gregory
Anselmi, MD & Laura Rizza, Patient Advocate
RSVP: www.BiogenMSsessions.com or call
1-866-955-9999
Sponsored
by: Biogen
-----------------------------------------
What: Gilenya® Patient Programs:
Know Your Options: A Closer Look at Gilenya® (fingolimod) and You
When: Tuesday evenings at 7:00 pm and
Thursday evenings at 10:00 pm
Where: Speakers Direct on Line, Webinars
Speaker(s): MD's, NP's and Patient Guides
Sponsored
by: Novartis
Pharmaceuticals
More
information: http://www.gilenyapatientprogram.com/meetings/pdf
Keep S'myelin - a newsletter about MS just for kids!
Keep S’myelin is a colorful, engaging, informative, and
reassuring newsletter to help children and their parents talk and learn about
MS together. Each issue is filled with stories, interviews, games, and
activities that highlight a specific topic related to MS, as well as a special
section just for parents. To receive this newsletter, contact Lisa at the
Chapter at Lisa.Torre-Janssen@nmss.org.
NJ Metro Chapter’s
first-ever Climb to the Top; 33 flights of
stairs, 822 steps closer to a cure!
- What:
Participants will climb 33 flights of stairs at Mack-Cali Harborside Plaza 5 in
Jersey City.
- When:
Saturday, March 28, 2015; Check-in will start at 12PM with the first wave
starting at 1PM (please note, waves will be assigned one week prior)
- Where:
Mack-Cali Harborside Plaza 5,185 Hudson Street, Jersey City 07311
- Registration
Fee: $35; Fundraising Minimum: $250
Don’t miss the after-party at Henry’s on the Hudson!
Celebrate with others, enjoy the NYC skyline view, receive a
complimentary appetizer and order dinner & drinks.
Registration: eventnjm.nationalMSsociety.org
For more information please contact: Julie Falgiano 732.508.4432 julianne.falgiano@nmss.org
Walk MS Weekend – April 18 and 19
Walk MS 2015 will feature 12 unique walk sites. Register today by
visiting walknjm.nationalMSsociety.org or by emailing njmwalk@nmss.org. Choose
from a Saturday walk or a Sunday walk, from parks to boardwalks and
more!
Exciting News! On April 19th Toufayan Bakery will make a
GUINNESS WORLD RECORDS® official attempt
for the Largest Display of Sandwich Wraps at the Walk MS event at Ridgefield
Park. In collaboration with volunteers from the National MS Society, Toufayan
will use its line of wheat, whole wheat, flavored, and gluten-free wraps to
wrap up a record, building more than 600 unique sandwich creations! It’ll be a
sight to see – don’t miss it!
Bike to Create a World
Free of MS!
Bike MS has something for
everyone… Don’t miss the chance to be a part of the national Bike MS
cycling series. We offer both active and virtual participation so that chapter
members can participate, inspire and encourage friends and family to join in
one or all of our Bike MS events, whether they pedal the route or not!
- Bike MS: Coast the Coast, May 16 & 17. Our
premier cycling event offers ride lengths of 25, 50, 85 and the two-day
170-mile route along the Jersey Shore from West Long Branch to Cape May.
- Bike MS: Barrels and Brews (formerly Bike MS: Hops to Hops), on
September 13 in Ringoes. Choose your route length of 40 or 62 miles and pedal over
the hills of the Amwell Valley. Celebrate at the Unionville Vineyard with a
relaxing lunch, wine and beer.
- Bike MS: Country Challenge on September 19 & 20 from
Morristown to Whippany and back. Route options offered are the
25, 50, 62 and the two-day 100-mile ride. Enjoy the Saturday finish line
featuring Oktoberfest food and entertainment!
Register or learn more at: www.nationalmssociety.org/Chapters/NJM/Fundraising-Events or call 732-660-1005, press option 2.
MS Rock for a Cure!
We can't wait any longer to share this awesome event with you!
We'll be partnering with the Count Basie Theatre & The Fab Faux – a Beatles
tribute band – on June 13 to bring you a brand-new concert event. Are you ready
to rock for a cure? For more information and to buy tickets, contact Karen at
the NMSS at 201-977-6054or at karen.drzik@nmss.org
Annual Spring Fling and
Gold Classic for the MS Center at Holy Name Medical Center
18th
Annual Spring Fashion Fling for MS
Sunday, April 26, 2015
Glenpointe Marriott, Teaneck, NJ
21st Annual Holy Name Classic Golf Tournament
Monday, June 8, 2015
Hackensack Golf Club, Oradell, NJ
For more information, please contact the Holy Name Medical Center Foundation
office at 201-833-3187 or foundation@holyname.org
You can read our most
current Chapter newsletter online from this link:
http://www.nationalmssociety.org/Chapters/NJM/Stay-Informed/MS-Connection-Newsletter
Find Us
On Facebook! https://www.facebook.com/NMSSnjm |
